Patient Update

Kicking back in my tutu with daddy

Nana & I playing with the swimming turtle she gave me

 My creative team (Mommy & Nana) brought home some play dough to help pass my recovery time

 

 Learning to roll out the dough

 

            Medicine is wearing off  

Mommies creation

 

 Mommy &Nana playing some Yahtzee

Thank you for all of your prayers and well wishing.  Liliah is recovering nicely.  She's been a trooper and has been much happier at home.  We've had a week plus of not getting a full night sleep.  Last night was our first night where she did not awake in pain or crying.  We continue to monitor her closely during her awake hours and she is not allowed to feed herself (which is frustrating for her).  She is now eating soft foods and is refusing ice cream!  She really wants to eat regular food, but we have to keep things simple for her to manage with her palate and keep the pain to a minimal.  We will revisit the doctor sometime next week to check out his work & her progress.  She's stopped saying, GaGa for daddy and gog for maddy our dog.....but she can't pronounce her D's.  She can now say ELMO though and it was actually her first word she said at the hospital once she saw her diapers.  My mom & I got the chills hearing her say this on the first day out of surgery.  She will definitely need to continue her speech therapy.